Uncertainty, culture and pathways to care in paediatric functional gastrointestinal disorders.
Identifieur interne : 001388 ( Main/Exploration ); précédent : 001387; suivant : 001389Uncertainty, culture and pathways to care in paediatric functional gastrointestinal disorders.
Auteurs : Sylvie Fortin [Canada] ; Annie Gauthier ; Liliana Gomez ; Christophe Faure ; Gilles Bibeau ; Andrée RasquinSource :
- Anthropology & medicine [ 1469-2910 ] ; 2013.
Descripteurs français
- KwdFr :
- Adolescent (MeSH), Attitude envers la santé (ethnologie), Autosoins (MeSH), Culture (sociologie) (MeSH), Douleur (diagnostic), Douleur (ethnologie), Douleur (psychologie), Enfant (MeSH), Entretiens comme sujet (MeSH), Ethnies (MeSH), Famille (MeSH), Femelle (MeSH), Humains (MeSH), Incertitude (MeSH), Maladies gastro-intestinales (ethnologie), Maladies gastro-intestinales (psychologie), Maladies gastro-intestinales (thérapie), Mâle (MeSH), Relations interpersonnelles (MeSH), Religion et médecine (MeSH), Émigrants et immigrants (MeSH).
- MESH :
- diagnostic : Douleur.
- ethnologie : Attitude envers la santé, Douleur, Maladies gastro-intestinales.
- psychologie : Douleur, Maladies gastro-intestinales.
- thérapie : Maladies gastro-intestinales.
- Adolescent, Autosoins, Culture (sociologie), Enfant, Entretiens comme sujet, Ethnies, Famille, Femelle, Humains, Incertitude, Mâle, Relations interpersonnelles, Religion et médecine, Émigrants et immigrants.
English descriptors
- KwdEn :
- Adolescent (MeSH), Attitude to Health (ethnology), Child (MeSH), Culture (MeSH), Emigrants and Immigrants (MeSH), Ethnic Groups (MeSH), Family (MeSH), Female (MeSH), Gastrointestinal Diseases (ethnology), Gastrointestinal Diseases (psychology), Gastrointestinal Diseases (therapy), Humans (MeSH), Interpersonal Relations (MeSH), Interviews as Topic (MeSH), Male (MeSH), Pain (diagnosis), Pain (ethnology), Pain (psychology), Religion and Medicine (MeSH), Self Care (MeSH), Uncertainty (MeSH).
- MESH :
- diagnosis : Pain.
- ethnology : Attitude to Health, Gastrointestinal Diseases, Pain.
- psychology : Gastrointestinal Diseases, Pain.
- therapy : Gastrointestinal Diseases.
- Adolescent, Child, Culture, Emigrants and Immigrants, Ethnic Groups, Family, Female, Humans, Interpersonal Relations, Interviews as Topic, Male, Religion and Medicine, Self Care, Uncertainty.
Abstract
This paper examines how children and families of diverse ethnic backgrounds perceive, understand and treat symptoms related to functional gastrointestinal disorders (FGIDs). It is questioned how different ways of dealing with medical uncertainty (symptoms, diagnosis) may influence treatment pathways. Semi-structured interviews were conducted with 43 children of 38 family groups of immigrant and non-immigrant backgrounds. The analysis takes into account (a) the perceived symptoms; (b) the meaning attributed to them; and (c) the actions taken to relieve them. The social and cultural contexts that permeate these symptoms, meanings and actions were also examined. It is found that, in light of diagnostic and therapeutic uncertainty, non-immigrant families are more likely to consult health professionals. Immigrant families more readily rely upon home remedies, family support and, for some, religious beliefs to temper the uncertainty linked to abdominal pain. Furthermore, non-immigrant children lead a greater quest for legitimacy of their pain at home while most immigrant families place stomach aches in the range of normality. Intracultural variations nuance these findings, as well as family dynamics. It is concluded that different courses of action and family dynamics reveal that uncertainty is dealt with in multiple ways. Family support, the network, and trust in a child's expression of distress are key elements in order to tolerate uncertainty. Lastly, the medical encounter is described as a space permeated with relational uncertainty given the different registers of expression inherent within a cosmopolitan milieu. Narrative practices being an essential dynamic of this encounter, it is questioned whether families' voices are equally heard in these clinical spaces.
DOI: 10.1080/13648470.2013.853026
PubMed: 24670161
Affiliations:
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(therapy)</term><term>Humans (MeSH)</term><term>Interpersonal Relations (MeSH)</term><term>Interviews as Topic (MeSH)</term><term>Male (MeSH)</term><term>Pain (diagnosis)</term><term>Pain (ethnology)</term><term>Pain (psychology)</term><term>Religion and Medicine (MeSH)</term><term>Self Care (MeSH)</term><term>Uncertainty (MeSH)</term></keywords><keywords scheme="KwdFr" xml:lang="fr"><term>Adolescent (MeSH)</term><term>Attitude envers la santé (ethnologie)</term><term>Autosoins (MeSH)</term><term>Culture (sociologie) (MeSH)</term><term>Douleur (diagnostic)</term><term>Douleur (ethnologie)</term><term>Douleur (psychologie)</term><term>Enfant (MeSH)</term><term>Entretiens comme sujet (MeSH)</term><term>Ethnies (MeSH)</term><term>Famille (MeSH)</term><term>Femelle (MeSH)</term><term>Humains (MeSH)</term><term>Incertitude (MeSH)</term><term>Maladies gastro-intestinales (ethnologie)</term><term>Maladies gastro-intestinales (psychologie)</term><term>Maladies gastro-intestinales 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immigrants</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">This paper examines how children and families of diverse ethnic backgrounds perceive, understand and treat symptoms related to functional gastrointestinal disorders (FGIDs). It is questioned how different ways of dealing with medical uncertainty (symptoms, diagnosis) may influence treatment pathways. Semi-structured interviews were conducted with 43 children of 38 family groups of immigrant and non-immigrant backgrounds. The analysis takes into account (a) the perceived symptoms; (b) the meaning attributed to them; and (c) the actions taken to relieve them. The social and cultural contexts that permeate these symptoms, meanings and actions were also examined. It is found that, in light of diagnostic and therapeutic uncertainty, non-immigrant families are more likely to consult health professionals. Immigrant families more readily rely upon home remedies, family support and, for some, religious beliefs to temper the uncertainty linked to abdominal pain. Furthermore, non-immigrant children lead a greater quest for legitimacy of their pain at home while most immigrant families place stomach aches in the range of normality. Intracultural variations nuance these findings, as well as family dynamics. It is concluded that different courses of action and family dynamics reveal that uncertainty is dealt with in multiple ways. Family support, the network, and trust in a child's expression of distress are key elements in order to tolerate uncertainty. Lastly, the medical encounter is described as a space permeated with relational uncertainty given the different registers of expression inherent within a cosmopolitan milieu. Narrative practices being an essential dynamic of this encounter, it is questioned whether families' voices are equally heard in these clinical spaces. </div></front></TEI><pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">24670161</PMID><DateCompleted><Year>2014</Year><Month>09</Month><Day>03</Day></DateCompleted><DateRevised><Year>2014</Year><Month>03</Month><Day>27</Day></DateRevised><Article PubModel="Print"><Journal><ISSN IssnType="Electronic">1469-2910</ISSN><JournalIssue CitedMedium="Internet"><Volume>20</Volume><Issue>3</Issue><PubDate><Year>2013</Year></PubDate></JournalIssue><Title>Anthropology & medicine</Title><ISOAbbreviation>Anthropol Med</ISOAbbreviation></Journal><ArticleTitle>Uncertainty, culture and pathways to care in paediatric functional gastrointestinal disorders.</ArticleTitle><Pagination><MedlinePgn>311-23</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.1080/13648470.2013.853026</ELocationID><Abstract><AbstractText>This paper examines how children and families of diverse ethnic backgrounds perceive, understand and treat symptoms related to functional gastrointestinal disorders (FGIDs). It is questioned how different ways of dealing with medical uncertainty (symptoms, diagnosis) may influence treatment pathways. Semi-structured interviews were conducted with 43 children of 38 family groups of immigrant and non-immigrant backgrounds. The analysis takes into account (a) the perceived symptoms; (b) the meaning attributed to them; and (c) the actions taken to relieve them. The social and cultural contexts that permeate these symptoms, meanings and actions were also examined. It is found that, in light of diagnostic and therapeutic uncertainty, non-immigrant families are more likely to consult health professionals. Immigrant families more readily rely upon home remedies, family support and, for some, religious beliefs to temper the uncertainty linked to abdominal pain. Furthermore, non-immigrant children lead a greater quest for legitimacy of their pain at home while most immigrant families place stomach aches in the range of normality. Intracultural variations nuance these findings, as well as family dynamics. It is concluded that different courses of action and family dynamics reveal that uncertainty is dealt with in multiple ways. Family support, the network, and trust in a child's expression of distress are key elements in order to tolerate uncertainty. Lastly, the medical encounter is described as a space permeated with relational uncertainty given the different registers of expression inherent within a cosmopolitan milieu. Narrative practices being an essential dynamic of this encounter, it is questioned whether families' voices are equally heard in these clinical spaces. </AbstractText></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Fortin</LastName><ForeName>Sylvie</ForeName><Initials>S</Initials><AffiliationInfo><Affiliation>a Anthropology Department , Université de Montréal , Montreal , Quebec , Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Gauthier</LastName><ForeName>Annie</ForeName><Initials>A</Initials></Author><Author ValidYN="Y"><LastName>Gomez</LastName><ForeName>Liliana</ForeName><Initials>L</Initials></Author><Author ValidYN="Y"><LastName>Faure</LastName><ForeName>Christophe</ForeName><Initials>C</Initials></Author><Author ValidYN="Y"><LastName>Bibeau</LastName><ForeName>Gilles</ForeName><Initials>G</Initials></Author><Author 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PubStatus="entrez"><Year>2014</Year><Month>3</Month><Day>28</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="pubmed"><Year>2014</Year><Month>3</Month><Day>29</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2014</Year><Month>9</Month><Day>4</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate></History><PublicationStatus>ppublish</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">24670161</ArticleId><ArticleId IdType="doi">10.1080/13648470.2013.853026</ArticleId></ArticleIdList></PubmedData></pubmed><affiliations><list><country><li>Canada</li></country></list><tree><noCountry><name sortKey="Bibeau, Gilles" sort="Bibeau, Gilles" uniqKey="Bibeau G" first="Gilles" last="Bibeau">Gilles Bibeau</name><name sortKey="Faure, Christophe" sort="Faure, Christophe" uniqKey="Faure C" first="Christophe" last="Faure">Christophe Faure</name><name sortKey="Gauthier, Annie" sort="Gauthier, Annie" uniqKey="Gauthier A" first="Annie" last="Gauthier">Annie Gauthier</name><name sortKey="Gomez, Liliana" sort="Gomez, Liliana" uniqKey="Gomez L" first="Liliana" last="Gomez">Liliana Gomez</name><name sortKey="Rasquin, Andree" sort="Rasquin, Andree" uniqKey="Rasquin A" first="Andrée" last="Rasquin">Andrée Rasquin</name></noCountry><country name="Canada"><noRegion><name sortKey="Fortin, Sylvie" sort="Fortin, Sylvie" uniqKey="Fortin S" first="Sylvie" last="Fortin">Sylvie Fortin</name></noRegion></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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